Posted by Kristal Louie on Wed, Mar 03, 2010 @ 04:41 PM
Spina Bifida Association Young Investigator Award
Please pass this information along to all of the health care providers involved in your child's care.
The SBA's Young Investigator Award will grant up to 3 research fellowships in the area of spina bifida research. Those eligible must be newly independent researchers (MD, PhD, DSW, DScN) in established research facilities. Prior research for the applicant does not have to be in the field of spina bifida. Researchers must be US citizens. Those who have held the title of Assistant Professor (or equivalent) for >2 years at the start of the fellowship are NOT eligible.
- The ASHLEE ROSE ADVANCEMENT IN RESEARCH will grant up to $50,000 USD. Area of interest relates to epidemiology and miscarriage due to neural tube defects.
- The TETHERED CORD RESEARCH AWARD will grant up to $40,000 USD. Area of interest relates to tethered cord syndrome.
- The SCHNEIDER CHARITABLE TRUST AWARD will grant up to $25,000 USD. Area of interest relates to bladder/bowel continence.
Dead line for application is 9pm 5/1/2010. Proposals will be reviewed by a team of scientists and clinicians familiar with the field of spina bifida research.
For more information or to obtain an application form, go to this link at the SBA Website.
www.sbgenetics.org
support@sbgenetics.org
Posted by Kristal Louie on Mon, Nov 30, 2009 @ 05:30 PM
What do I have to do to participate? Spit !
The best thing about this study is ..... NO NEEDLES! All we need you to do is spit. Hopefully your son or daughter will spit for us too. All in the comfort of your own home, you can do it in front of the TV with your feet up on the recliner, or at the kitchen table, anywhere you want. Don't worry a bit if your son or daughter can't spit, we have a special cheek swab kit just for that situation. Sometimes rubbing the outside of the cheeks or thinking of a warm bowl of macaroni and cheese helps! Please contact us for other tips !
Quoted with her permission, one of our participants said "happy to participate and the process was extremely easy."
I remember my mom telling me it isn't nice to spit, however this is one situation where we really want you to spit and so do 400 HUNDRED other participants who have already spit for this great cause. Please consider enrolling if you have not already. http://www.sbgenetics.org/
Kristal
www.sbgenetics.org
support@sbgenetics.org
Posted by Kristal Louie on Fri, Nov 06, 2009 @ 12:36 AM
Hello !
We are among the first researchers to study the unique theory that tiny changes to our folic acid genes might impact us in a significant way by increasing the risk of having a child with Spina Bifida. Our hope is that with the help of all the participants we will find a way to prevent Spina Bifida.
Our group includes researchers from Children's Hospital of Oakland, the University of California Berkley, Stanford University, and the University of California San Francisco. The preliminary research has shown that some of us may not metabolize folic acid as efficiently as others. That means that the standard recommendation of 0.4 milligrams may not be enough. Some of us may need to take at least 4 milligrams (a ten-fold increase from the RDA) to compensate. The unfortunate thing is that currently there are no pre-conception tests to determine if you or I might be one of these women. With the help of mothers and children with Spina Bifida we hope to find a way to provide women with this information before they become pregnant, when they can do something about it.
We want to thank all the mothers and children who have already participated. We would love it if we could get even more mothers and their children to participate as the more data we have, the stronger our results will be. So if you have already participated a BIG THANK YOU !!! If you have not, please consider participating. Help us by telling your friends about the study or send them a link to the website. We need your help!
Kristal
P.S. Please feel free to post any comments you have !
http://www.sbgenetics.org/
support@sbgenetics.org
www.sbgenetics.org
support@sbgenetics.org