Subscribe to our blog

Your email:
Follow sbgenetics on Twitter
SB Genetics on Facebook

About Spina Bifida Genetics Research Project

The Spina Bifida Genetics Research Project is seeking women of children with Spina Bifida to participate in a study that will help determine the causes of Spina Bifida and lead to its prevention.

Hi, my name is Kristal Louie.  I am a study coordinator for this exciting research project and I am an American and Canadian Board certified Genetic Counselor. 

Spina Bifida Genetics Research Project

Current Articles | RSS Feed RSS Feed

Spina Bifida - Abigail Branson

Share on Twitter Twitter | Share on Facebook Facebook | Submit to Digg digg it |  Add to delicious  delicious |  Submit to StumbleUpon StumbleUpon | Submit to Reddit reddit 

Abigail Branson Not Limited by Spina Bifida.

Extraordinary Measures, the CBS movie starring Brendan Fraser and Harrison Ford, is set for release on January 22, 2010.  Extraordinary Measures is based on the true story of a family who is diagnosed with a genetic condition called Pompe Disease and how they fight for a better quality of life.  CBS is taking the theme of the movie one step further by donating $10 000 to a charity chosen by the Inspirational Quilt sweepstakes winner.  The Inspirational Quilt is a collection of videos uploaded by people who have triumphed over various medical and developmental challenges.  Abigail Branson's video Abigail Branson Not Limited by Spina Bifida is her story of how she has achieved more than what some thought possible.  If the video is chosen as the winner, the donation will go towards the Spina Bifida Association.   It is a wonderful profile of this remarkable girl and her family.  Please consider viewing her video and voting before February 1, 2010 to help her win the sweepstakes!

The video can be found at the following link.  The videos are randomly shuffled on each page so use the "search" function at the bottom of the Inspirational Quilt page to find hers.

Kristal

www.sbgenetics.org

support@sbgenetics.org

 

All Posts