Posted by Bruce Cohen on Fri, Dec 18, 2009 @ 12:20 PM
Why
we do this.
Every
once in a while, one is reminded about the importance of the work that we
contribute to by supporting biomedical research. Sometimes even those of us who work in the
industry are unaware of all the people who demonstrate enormous amounts of
courage that are hard to imagine.
As
part of the SB Genetics Research Project, I get to spend a fair amount of time
at Spina Bifida events – to raise money and awareness, to build community and
to enjoy each other’s company at the holidays.
Our research project is being actively supported by more than 30 Spina
Bifida advocacy groups around the world and 22 hospitals with Spina Bifida
treatment centers. Our participants
represent 47 states and 11 countries.
Nearly all of that support comes from volunteers and professionals whose
only goal is to help reduce the incidence of Spina Bifida for future
generations.
This
past week-end, I was fortunate enough to attend the inaugural WinterBifida
Fest, sponsored by the Spina Bifida Association of San Diego. It was extraordinary to be a part of this
event and to meet a true hero – Aaron “Wheelz” Fotheringham, an extreme
wheelchair athlete who landed the first wheelchair back flip. Aaron has something to teach everyone, not
just people in wheelchairs, about strength, conviction and never giving up. His message of hope and perseverance in the
face of adversity resonates with everyone who has a heart.
Please take a minute to watch the video from the NBC affiliate in San Diego.
We
are proud and humbled to be associated with this vibrant, compassionate
community. It sustains and motivates
us.
--Bruce
www.sbgenetics.org
support@sbgenetics.org