Subscribe to our blog

Your email:
Follow sbgenetics on Twitter
SB Genetics on Facebook

About Spina Bifida Genetics Research Project

The Spina Bifida Genetics Research Project is seeking women of children with Spina Bifida to participate in a study that will help determine the causes of Spina Bifida and lead to its prevention.

Hi, my name is Kristal Louie.  I am a study coordinator for this exciting research project and I am an American and Canadian Board certified Genetic Counselor. 

Spina Bifida Genetics Research Project

Current Articles | RSS Feed RSS Feed

Spina Bifida - No Fault or Blame

Share on Twitter Twitter | Share on Facebook Facebook | Submit to Digg digg it |  Add to delicious  delicious |  Submit to StumbleUpon StumbleUpon | Submit to Reddit reddit 

Again and again I hear from mothers that they know that they are not at fault.  However sometimes I sense a flash of doubt coming through as they wonder if they are at fault somehow.  Even if you have heard it a thousand and one times from your best friend, your partner, or your doctor, sometimes you just need to hear it one more time.  It wasn't your fault.  You are not to blame.  Nobody, especially you, should carry that heavy burden of blame.

Some women did not know to take folic acid 3 months prior to getting pregnant and they had a baby with spina bifida.  Was that you?  Even though you might not have known to take folic acid, it still doesn't make it your fault.  You are not to blame.  Some women were told to take folic acid 3 months prior to getting pregnant but they still had a baby with spina bifida.  Was that you?  Are you wondering if there was something else that you were supposed to do?

The bottom line is that regardless of what you did or did not do, you never wanted to harm your baby.  That is the MOST important thing to remember.  You must remember in those brief moments of self doubt when you start to wonder if you are at fault, at blame, that you DID NOT want to wish any harm.  YOU are NOT at fault, NOT to blame.  That burden is NOT for you to carry.

www.sbgenetics.org

support@sbgenetics.org

 

All Posts