Posted by Bruce Cohen on Tue, Nov 10, 2009 @ 01:11 PM
Our Spina Bifida Genetics Study now has participants from 46 states and 7 countries -- Australia, Canada, El Salvador, England, Ireland, Mexico and Scotland. Thanks to our campaign on the Internet and help from Spina Bifida advocacy groups, we're reaching out to women around the world who want to help us find a way to prevent Spina Bifida.
In Europe, we've been able to contract with a professional forwarding service, so study participants just have to mail their sample kit to an address in England. The service consolidates the shipments and deals with the customs procedures.
Outside of Europe, we're either sending our participants envelopes with international postage or reimbursing them for the postage. Since the customs requirements are minimal, we hope that won't be too much trouble. If anyone has any suggestions to make this easier, please write to support@sbgenetics.org with your ideas.
All of us are excited and very grateful for all the help we're getting here in the U.S. and around the world. It's great to be working with a community that cares.
As always, if you can help us get the word out, please take a moment to send the study link -- www.sbgenetics.org -- to anyone you know who has a child with Spina Bifida. With your help, we can make a difference.
--Bruce
www.sbgenetics.org
support@sbgenetics.org