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About Spina Bifida Genetics Research Project

The Spina Bifida Genetics Research Project is seeking women of children with Spina Bifida to participate in a study that will help determine the causes of Spina Bifida and lead to its prevention.

Hi, my name is Kristal Louie.  I am a study coordinator for this exciting research project and I am an American and Canadian Board certified Genetic Counselor. 

Spina Bifida Genetics Research Project

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Spina Bifida - Greatness

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Greatness

Somebody tipped me off to a great site.  On the Children and Adults with Spina Bifida & Hydrocephalus site, they have a long list of people who have great accomplishments.  These individuals either have spina bifida or a loved one with spina bifida.  Why don't you check out the page to see how many names you recognize?  If you know of someone who needs some encouragement maybe they can find a role model.  Robert Hensel, an international poet & writer, completed a non-stop wheelie in his chair for over 6.178 miles !!!

One note it may not be suitable to view the page for the first time with young children.  One of the featured famous people is the renowned female artist Frida Kahlo, who is rumored to have had spina bifida.  One of Frida Kahlo's paintings is displayed that may not be appropriate for young eyes.

Kristal

www.sbgenetics.org

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